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  1. Progetti

A new EU Framework for an Ethical Re-use of Health Data

Progetto
The EU has recently enhanced the potential of health data in the EU digital market by promoting a number of initiatives and new regulations to facilitate data sharing and re-use among public institutions: the forthcoming provisions of the Digital Strategy Corpus of law. These, in combination with pre-existing rules and practices of health data exploitation, might sharpen the risks for citizens, for example allowing public bodies to exploit big data sets - to make detrimental decisions regarding the access of certain patients to health care (e.g., in the case of insurance-based systems). In this context, academic analysisis urgently needed, as well assuggesting a revision of the new regulationsto EU policy-makers to facilitate responsible data sharing. DataCom aims at building a new framework to facilitate an ethical secondary use of health data held by public bodies, with the aim of improving accountability and enhancing responsible re-use. To build it, I will develop and test in intersectoral practical environments the innovative concept of “Ethical Commodification”: the possibility of exploiting personal data in an ethical way for the public good, in accordance with the data subject’s expectations and needs and taking into account the risks associated with the exploitation of anonymized data sets, focusing on 3 Member States, Italy, Spain, and the Netherlands. In order to reach this objective, DataCom has a strong interdisciplinary and intersectoral approach, bridging law, ethics, and computer science, taking into consideration the needs of the public sector and those of citizens. To ensure the successful implementation of these project goals I will conduct my research at the University of Turin's Law Department, with the guidance of Prof. Ugo Pagallo, a leading scholar. This project will prepare me to become a tenured scholar and obtain advanced funding, strengthening my academic profile and allowing me to establish my own research group.
  • Dati Generali
  • Aree Di Ricerca

Dati Generali

Partecipanti

PAGALLO Ugo   Responsabile scientifico  

Referenti (2)

GALASSO Raffaella   Amministrativo  
VARVELLO Francesca   Amministrativo  

Dipartimenti coinvolti

GIURISPRUDENZA   Principale  

Tipo

HEU MSCA Postdoctoral Fellowships (PF) - EUROPEAN

Finanziatore

EUROPEAN COMMISSION
Ente Finanziatore

Partner

Università degli Studi di TORINO

Contributo Totale (assegnato) Ateneo (EURO)

188.590,08€

Periodo di attività

Luglio 1, 2023 - Giugno 30, 2025

Durata progetto

24 mesi

Aree Di Ricerca

Settori (5)


SH2_8 - Big data in political and legal studies - (2022)

Settore IUS/20 - Filosofia del Diritto

PIANETA TERRA, AMBIENTE, CLIMA, ENERGIA e SOSTENIBILITA' - Diritto dell'Ambiente

PIANETA TERRA, AMBIENTE, CLIMA, ENERGIA e SOSTENIBILITA' - Informatica e Ambiente

SOCIETA', POLITICA, DIRITTO e RELAZIONI INTERNAZIONALI - Statistica Applicata e Sociale

Parole chiave (12)

  • ascendente
  • decrescente
Anonymization
Data Governance Act
Data protection
Digital Strategy
EU Law
Ethics and morality, bioethics
GDPR
Health Data
Privacy Law
Social and behavioural science
complexity and cryptography, electronic security, privacy, biometrics
health law rights
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